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Dementia

Katy Butler’s Dementia Directive

August 5, 2019

Dear Medical Advocate; If you’re reading this because I can’t make my own medical decisions due to dementia, please understand I don’t wish to prolong my living or dying, even if I seem relatively happy and content. As a human being who currently has the moral, legal, and intellectual capacity to make my own decisions, […]

Filed Under: Dementia, Tagged with: Advance Directives, book, Dementia, Katy Butler

Complaints of a Dutiful Daughter -A film by Deborah Hoffmann

April 30, 2019

1994, 44 minutes, Color With profound insight and a healthy dose of levity, the Academy Award-nominated COMPLAINTS OF A DUTIFUL DAUGHTER chronicles the various stages of a mother’s Alzheimer’s Disease and the evolution of a daughter’s response to the illness. The desire to cure the incurable-to set right her mother’s confusion and forgetfulness, to temper […]

Filed Under: Dementia, Tagged with: film

In The Moment

March 9, 2019

Essential listening for understanding how to be with people who have dementia. This American Life “Magic Words” Act 2 : Rainy Days and Mondays. Producer Chana Joffe-Walt talks to a woman named Karen Stobbe and her husband, Mondy about a plan they’ve recently enacted in their family. Karen’s mother lives with them and she has […]

Filed Under: Dementia,

Duplex Planet -David Greenberger

March 9, 2019

Its a zine. It’s a book. It’s an album…. I discovered these zines in my early 20s, when I was first experiencing people with dementia and the warehousing of elders, encouraged me to expand my experience and my imagination, more possibilities for connection and joy. In 1979 I took a job as activities director at […]

Filed Under: Dementia, Memorial Arts, Tagged with: book

Out of Time: The Unbecoming of Self -Sallie Tisdale

March 8, 2019

Essay published in Harper’s Magazine is one my favorites on dementia. Sallie Tisdale is a wonderful writer and a palliative care nurse. Her latest book, Advice for Future Corpses is fantastic–minus the tiny section where she writes about hospice. Sallie Tisdale’s Website.

Filed Under: Dementia,

Dementia Directive

March 2, 2019

Advanced Directive for Dementia Dementia Provision from Compassion and Choices NPR feature JAMA article VSED : Voluntary Stopping Eating and Drinking

Filed Under: Advance Directives, Dementia, Tagged with: web

Gladys Worms Natchez

February 15, 2019

11.18.1929 – 05.28.1994 ,My Great Aunt Gladys launched my career as an oral historian. She bought me my first audio recorder so that I could interview her about her life before she chose to end it. Gladys had dementia and did not want to stick around as it progressed. Saying good-bye to her was a […]

Filed Under: Death Jewels, Dementia,

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